Control your phone, tablet, computer or Smart TV via GlassOuse Assistive Device. Choose from 9 different switches to pair with GlassOuse or use GlassOuse on its own using Dwell Software. Visit www.glassouse.com and discover all the items.
Que alegría comezar o día con imaxes enviadas por Franciska, a directora do centro Namelok Naretoi, dos rapaces e as actividades do centro.
Franciska e máis eu estamos moi agradecidas pola última aportación económica ao proxecto que se realizou grazas á venta de libros de @mirenamazor quen, solidariamente decidiu donar parte da venta da obra ao Sorriso da lúa.
Nonie Insall, a physcotherapist and an Acorn Trustee, will be speaking at our 2020 Guildford Healing Conference, on 1 Feb, at Guildford Cathedral in partnership with the Diocese of Guildford. Nonie is a physcotherapist, an Acorn Trustee and part of our Ministry Team. She will be speaking on #wellbeing and the emotional toll of being in the #healing ministry. Secure your place via our website. @ourcofeguildford#teaching#sharing#worship#prayer#mentalhealth#disability
Turn on, tune in, space out.
For almost six months I've been following moon rituals thanks to advice and guidance from @spiritdaughter. Like a compass, it's given me a direction to follow both creatively and spiritually when I ebb and flow with energy, pain and solitude.
We've collectively experienced our first full moon of the year, the Wolf Moon, and it was in the sign of Cancer. A full moon is always in the opposite of the sun sign, which is currently Capricorn.
Moon and Sun, opposites and collaborators.
My own sun sign is Cancer which is ruled by the moon, so the learnings from this feel particularly enriched.
It's taken me a while to get my head around a lot of this, and there's still so much more to learn about following the moon. I do what I can and I'll try not to confuse anyone else.
Tuning into your best frequency is a theme I keep finding. So when I felt inspired to create an illustration of the recent Wolf Moon in Cancer, the old Norman Cook song "Turn on, tune in, cop out" kept popping into my brain. After a bit of a Google I discover the original phrase was by psychologist Timothy Leary and it read "Turn on, tune in, drop out". Leary understood consciousness profoundly. He also understood this phrase had been misinterpreted during the psychedelic era.
My play on the original phrase is #TurnOnTuneInSpaceOut which I should probably explain—
Turning on my mind to learning more, perhaps also turning on my binaural beats.
Tuning into my highest and best frequency in my heart and soul, tuning in to good vibrations from others, and things that bring me joy.
Spacing out in meditation, spiritual exploration and delving into moon and sun rituals.
It's a thought I couldn't shake so I needed to draw it, write it and let it go out into the world.
Do you follow the moon, if you do, what does it bring you?
The best kind of projects are those that leave an imprint on our hearts long after it's completion 💕And this one did just that! The Meadow Wood remodel is complete and our hearts are full knowing that our clients lives just got a little easier with this renovation. By helping them create a fully functional ADA basement living space, and thus an opportunity to age in place comfortably, means everything to us! Photo Cred. @the_vine_studios
1 216 January, 2020
- How to consult around access for Deaf and Blind in the same show. - Conflicting access needs?
- Additive process rather than subtractive process towards Access embedding - What’s it like as an able bod listening to this conversation and process? - The mainstream needs to change - diversity, Disability, inclusive practice. There are disabled artists who can lead - something that isn’t at the forefront of mainstream consciousness - Kaupapa - why are we doing this? What is our purpose? If you don’t know how to live along side me, you don’t have the skills to make any work accessible. - How do we form ourselves together with our allies? United front - the us is not defined yet
- We are all coming to the creation of work in a brand new way. - Placing ourselves in a position that may be highly scrutinised. - Access should not be noticeable. It should be seamless. - Access should be part of the writing of the play but who might be excluded? - There is not enough access history in the arts but we can borrow from other industries - We have to be “Yes, and...” people in creating pieces
- Third Way the space between the social and the medical models - ‘cultural’
- Acknowledges our bodies and how we do things as habitual behaviour - Charity Model - asylums - punished for our bodies - Removal of ‘Impaired’ from any titling
- Shaming the person with disability - ‘Person with an access requirement’ UN definition - We have to remove the barriers in society
- People with higher complex needs are not being heard with ever increasing calling on available funding - As a nation we are not anywhere in the mix in understanding all the models. We are not across the social model
- We are shamed every day of our lives
- Who has the responsibility of the change? - A barrier can be so many different things. - Climate Change and how it affects us and our cohort
- Emergency situation and would we as pwd be saved
- What do the disabled population have to offer the betterment of the general population in the climate change crisis
- Cultural reboot required to put disability first
- *As disabled people we have a limited air supply but we are not meant to know about it*
Do you enjoy spending time drawing with your kids? ⠀
* Fine Motor Skill Development⠀
* Encourages Visual Analysis⠀
* Helps Establish Concentration⠀
* Improves Hand-Eye Coordination⠀
* Increases Individual Confidence⠀
* Teaches Creative Problem Solving⠀ #everychildcounts#supportingfamilies#helpingkids
1 216 January, 2020
"Disability is the inability to see ability." Episode 2 | Our Adviser Miss Suhaira Sajid (@suhairasajid) in conversation with Riffat Ishfaq (special person). They Deserve Our Good Behavior, They Deserve Our Support.
Reactive Training \ On the ball! 🏀 Having some fun in the gym with reactive training. This type of training helps the nervous system respond and react, by encouraging the muscles and nerves to communicate! Mixing ladder work in with ball 🎾 skills is also a great way to not only improve coordination, but keep our exercise engaging and interactive, for maximal benefit!
Tomorrow at 1 is supposed to be the day. 9 states, 1200 miles, 23 hours in the car, 2 full days of travel, but 6 days since I was given the green light for an admission. If you've been following my Stories, you know. For those who haven't, this will all be a confusing shock. So, before I leave, I needed both a hello and goodbye post for my upcoming admission; I'll likely be gone for a minimum of ~3wks.
Why am I going in and what's w/ all the pure chaos?! I'm honestly just too depleted and overwhelmed to explain, but this is a mental health admission on a trauma disorders unit, but also w/ the intent of stabilising my radically declining medical health. (Endless loops of adrenal crashes, which trigger the EM spread in my organs, push me to critical health, then trigger specific memories from my organised violence bkgd, which ofc sets off an adrenal crash again, etc etc.) We had to work w/ the unit and make some radical clauses to get me admitted and to keep me medically stable [like working w/ the local medical hospital, my home hospital, etc (in case I crash or have an emergency, which is unfortunately a high likelihood), having my mom stay in LA for the duration of the stay, etc etc.] Despite all these stipulations, the unit, my therapist and drs at home, the drs and hospitals there, and even my insurance companies have all been extremely supportive, cooperative and have whatever they can to get me here and admitted. They recognised the emergency. My attempts and SUI. My rapid medical decline. The relationship between the two. The need for exceptional circumstances IP. They've ALL been great and insistent that this work out.
So why am I still in a hotel 3wks after this process began? And reluctantly say 1 o'clock SHOULD be my admission time? Well, sadly I HAVE hit tremendous, unethical, unprecedented and potentially illegal resistance w/ *one* person and one person alone. Someone w/ ZERO authority over my treatment whatsoever. But who does hold the key to all connections between insurance, the hosp, and admissions coordinator. She basically held my admission hostage despite everthing being covered, and the hospital eager to get me in. The entire process ⬇️⬇
My life since my Dysautonomia P.O.T.S diagnosis 😵🤔😮 . . . .
Am I cured since diagnosis? No, There is no cure or magic treatment for dysautonomia . .
My mindset has changed. I feel an immense relief and weight lifted off my shoulders. I have a better idea of what is happening inside my body. I feel more powerful when asking for help and boundaries (I need this because of xyz) I feel more in control, as I am able to do a few things to help that is backed by science and my doctor's.
Do I physically feel better? Not really, I go through many ups and downs as does every chronically ill person. My condition seems to be progressing over time. (More fatigue, more pain, more symptoms) . . .
It's helped my mental health as well. I felt I was going mad from seeing doctors and being told there was "nothing wrong" year after year after year, trying medications and treatments that only seemed to make it worse. My mum and I both cried when the doctor told us he suspected dysautonomia (before it was confirmed) it has been almost 6 years of waiting for answers and this is a huge piece of my health puzzle. It's a relief to finally be able to answer people when they ask "what's wrong with you" 😭 . . . .
Hope and treatments for the future: . . . .
As recommended by my cardiologist, I'm hoping to receive saline infusions, this may help alleviate some (or the severity ) of some symptoms. I am unable to go to school even with poppy due to the severity of my symptoms but I've just started teaching art to two girls who are home schooled one day a week 😊 this will allow me to pay for more CBD products to help with pain. I'm on a waiting list to see a ruematauligist who can hopefully shed some light into why I have so much pain and inflammation. (P.O.T.S would not cause the degree that I have) . . .
I hope I have more to share with you all soon 💪🏻💗
11 1616 January, 2020
Never have I been this motivated to make a positive change in my life. It takes a lot of confidence and patience as this isn't an overnight project.
Hello friends! I'm turning 30 very soon & would greatly appreciate if you could donate to my fundraiser for Emerge Australia. Emerge is the leading ME/CFS society in Australia and does so much good work for people with ME/CFS; both supporting them personally and advocating politically.
They have impacted me personally through the support they offered both myself & my family when I was incredibly unwell. When I was in hospital, the then head of Emerge was on the phone to mum every day to offer advice and advocacy. In recent times, they have set up a telehealth nurse to offer free consults with ME/CFS patients, including helping with NDIS applications, and have also advocated for ME/CFS patients to be on List B for NDIS (their applications would carry more weight). This fundraising will also go towards developing GP education modules, one of which has just been released (so if you know a GP, let them know!).
ME/CFS sorely lacks advocacy and research funding, so anything you can contribute would be welcome. Link in profile.
[Image: A screenshot from the Emerge website, Siobhan's 30th Birthday Fundraiser. An image of Siobhan is below with the donate button.]
يقوم الموظّف المسؤول في سايكوهيلث بالتنسيق الدائم مع المؤمّن عليه ومركز العلاج الطبيعي لتجنّب أي سوء استخدام لفوائد وحدود التغطية
SAICOHEALTH’s in-house administrator always coordinates with the insured member and physiotherapy center to avoid any misuse of the benefits and coverage limit of the treatment.
Not only do none of the airports in the tri-state area have bathrooms that are completely accessible for ALL people with disabilities, but they don't even respond to being contacted!!!
I've tried to do this the nice way.
I've emailed them for 2 months, messaged on fb, emsiled again, & called.
Maybe one of the people in the port authority's administration needs to know what it feels like to get on an airplane soaking wet with urine or worse and have NO PLACE to get cleaned up.
Then they'll take this seriously.
So far I've tried-
Maybe if other people contacted them, they might take this seriously.
4 216 January, 2020
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When you book an accessible hotel room and get there, and 'all the accessible rooms are already booked.' I asked about the bed height, because I just needed to be able to get in bed and straight to the hospital by 7am. She said the beds were universal, and all the same height 😑 I doubt the beds in the accessible rooms are a good 7" taller than my chair. Luckily my home nurse traveled up to spend the night on her own dime and could help get me into bed, because with Shawn's neck/shoulder injury, he can't lift me.
Anyway, we got settled in and heard somebody pounding on the door. Shawn answered it and it was some weird guy who said "I'm looking for Elizabeth." No Elizabeth here. "So is she just not here or what?" Wrong room buddy. Then a little while later, more knocking. It's the police. They ask if we know why they're here; we obviously don't. Then one of them asks me if I'm a famous YouTube star. Would be nice, but no 😂 Apparently the weird guy had called the cops, told them I was a famous YouTube star named Elizabeth and Shawn was holding me hostage. After confirming that I was indeed not being held against my will, we just laughed it off and they left.
Sooo that was weird. Hopefully Elizabeth's safe, wherever she is 🙄
59 63715 January, 2020
Swimming BLIND has been crazy! Its been six long months swimming as a blind swimmer and I’m starting to get the hang of it. Although, I’m very bruised and battered, I wouldn’t give it up for the world. I’m still having trouble swimming straight and I continue to smash into the lane lines, but it’s getting better each day. When I first started 6 months ago, I couldn’t take a stroke without crashing and crying it was not fun. I would have a breakdown every time I swam. Now, I have an amazing coach who is kind and tough and is helping me reach my goals. Even though it’s extremely difficult for me to swim without my vision, its what I love and what keeps me motivated to get up each morning and try to be better!
Photo description: Anastasia sitting with her legs in the pool and her back toward the camera with a bathing cap on and a bathing suit on with her neck turned towards the camera
Inspiration porn is the portrayal of people with disabilities as inspirational solely or in part on the basis of their disability. I don’t mind being someone’s inspiration. Shit people with disabilities inspire me daily to persevere through my obstacles. While thinking about the inspiring people in my life I can’t help but to go back to all of my wheelchair using friends that have every reason to quit but continue anyways.
I’m also inspired by myself. Some days my disability will try to highlight all of the ways it limits or inconveniences me, but I maintain forward momentum to my goal ANYWAYS. My passion and forward progress through adversity helps my hunger for continued personal growth.
We can let the road blocks end our journey, or we can reroute ourselves to the desired destination. There are lessons in our obstacles. ♿️ #wheelwithme
97 1,91215 January, 2020
1.15.12 ~ 8 years ago today... One of my favorite pics of Lola. Those eyes, the darling bunny boots, the little freckles. Perfection. Miss you & love you so much, Boo. 💗⭐️
'NEGATIVITY' & CHRONIC ILLNESS⠀
📷my collab with @thisthingtheycallrecovery⠀
Something I see a huge amount on social media (and interestingly even just in the chronic illness community itself) is people conflating negativity with people being realistic and speaking honestly about the reality of their health situation, whatever that may be.⠀
Of course, tone, relationships and generally how people speak about things *can* be negative (idk you all individually!) and play a role here, but I know in my case, saying things like, 'oh I feel like absolute shite', or 'I'm in too much pain to walk' are not me wallowing in self-pity, it's just realistically expressing about my situation. And then I move on with my day.⠀
A lot of this comes back to seeing people talking about their health honestly and realistically as 'defining themselves by their illnesses' and it makes some people uncomfortable - so patients feel pressured to self-censor how they talk about their health.⠀
'Stop being negative' is yet another tool that people use to shift blame onto someone who is ill and has not 'got better'.⠀
Of course the way we view ourselves and our illnesses is wildly important to our quality of life. But it's unrealistic to ask ANYONE to be positive all the time, especially when you're navigating grief and often severe pain and other symptoms. And things can be taken too far, when people are told the reason they're not cured (from their incurable illness) is because they don't *believe* they can. ⠀
*Insert Natasha eye roll here*⠀
I like to say I'm realistically optimistic, and FOR ME, unending positivity would read as massively fake and be a way for me to just ignore the reality of my situation.⠀
Yet again, this is probably one of those cases where it's super individual - if you feel that unending optimism helps you - that's great. I'm happy for you. But it's also important to remember, that may not be the case for others.⠀
I can feel the whole spectrum of emotions about my life and my health. I'm allowed to feel negative about it but most of the time, it just. Is. And expressing that shouldn't be seen as negative. It's just my reality.