🕹DISABILITY AND ACCESSING WORK 🕹
What I’ve noticed so strongly with both physical and mental health disabilities is that you have to be able to help yourself in order to get anywhere. If you need help finding help, or if you need help accessing help (mentally or physically) in any way, you’re fucked.
The system is really flawed in this way because so many people with long term health issues lack the ability to help ourselves in various ways and can’t take the necessary steps to reach the service/ person/ place/ institution we so need. I know that I and so many other mentally or physically disabled friends feel stuck in the position of being intelligent and qualified enough to not need specific skills training (which is what most charities offer), but still unwell enough that there are still multiple barriers to consider when looking, applying and accessing a job that works for our minds and bodies.
It feels like such a waste of potential but the world just isn’t set up to cater to people like us, even though we have a lot we could contribute to the world. It’s really sad and I wish there were more services who could recognise this and provide help to us otherwise we are likely to continue to fall between the cracks.
I also want to acknowledge that some of us might not now or ever be able to work, and that’s okay too. There is so much stigma around long term unemployment and it can put a ton of pressure on people to work who genuinely don’t have the capacity to. I feel under a lot of pressure to find work but right now I am only just holding on by a thread and I’m not even sure it’s within my ability, especially if I can’t access help to get there....
If anyone has experienced and related, or had success with the above, please comment below! It would be great to know about any charities, schemes, or services who can help people in our situation.
(Random old photo with my zebra loves @thechroniciconic@frankiiproblems because they get it and also why not)
Das beschreibt unser Wochenende ganz gut. Das Wetter war so richtig mies. Samstag haben wir noch einen Ausflug mit Tochterkind und Hunden in die Stadt gemacht - den wir dann aber kurzerhand abgebrochen haben, weil es so stark regnete. Das Training haben wir dann in den Baumarkt verlegt. Da war es wenigstens trocken 😂 Anschliessend gab es fuer den Rest der Familie Erdbeeren und wir haben den Tag gemeinsam auf der Couch ausklingen lassen. Ach nee. Ich war noch in der BaWa und anschließend ging mein Kreislauf baden, so dass mein Sohn und mein Mann Mühe hatten, das ich nicht von der Treppe purzelte 🙄 Sonntah das gleiche miese Wetter. Ausser Handball vom Mittelkind und abends eine Stunde Nachhilfe stand nix an und wir haben gegammelt. Muss auch mal sein. Die Hunde waren müde vom nix tun.
Heute regnet es nicht und meine Stimmung ist gleich besser. Auch wenn es körperlich eigentlich nicht drin war, waren Tyson und ich Spazieren. An solchen Tagen laufen wir nie wirklich weit. Sondern nur eine Mini Strecke. Aber es wird ausgiebig geschnüffelt, ich verstecke den Futterbeutel und wir beschäftigen uns dann mehr auf der Stelle. Manchmal fliegt dann auch ein Ball, damit ER ein wenig flitzen kann. Trotz wenig Bewegung glaube ich, das Tyson auch damit zufrieden ist. Heute steht noch ein Nachholspiel vom Pubertier an, ansonsten nix! #eds#heds#ehlersdanlossyndrome#ehlerdanlossyndrome#hypermobility#chronischkrank#assistenzhundinausbildung#assistenzhund#australianshepherd#lebenmithund
0 449 minutes ago
Explaining my chronic illness part 2! Sorry this has taken so long to do, I have had migraines every day for the past 2 weeks.
Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME): CFS or ME is a multi-system disease that causes dysfunction of the immune, endocrine, neurological, and energy metabolism systems. It often follows an infection and leaves 75% of those affected unable to work and 25% home bound or bedridden. CFS/ME has a lot of symptoms, and some of them are: unrefreshing sleep, pain in the muscles and joints, headaches, cognitive symptoms, muscle fatigue ability, and so much more. CFS/ME is so much more than just “feeling tired”, and can be very debilitating.
MCAS: Mast Cell Activation Syndrome is condition where the body releases too many allergy cells (called mast cells which are responsible for immediate allergic reactions) causing repeated episodes of the symptoms of anaphylaxis - allergic symptoms such as hives, swelling, low blood pressure, difficulty breathing, and severe Diarrhea. MCAS is often found with people who have POTS, EDS, and gastroparesis.
RBBB: A Right Bundle Branch Block is a condition in which there is a delay or blockage along the pathway that electrical impulses travel to make the heart beat. The symptoms if there are any might include fainting or feeling like you’re going to faint. Not everyone gets symptoms from RBBB but I do. Because RBBB affects the electrical activity of the heart it can make it harder to accurately diagnose other heart conditions.
SVT: Supraventricular Tachycardia is defined by an abnormally fast heart rate. It’s a broad term that includes many types of heart rhythm problems. SVT May come and go suddenly, with stretches of normal heart rate in between. Symptoms may last from a few minutes to a few days. Symptoms are: palpitations, shortness of breath, lightheadedness or dizziness, fainting or near fainting, chest pain, and a fluttering feeling in your chest.
Disclaimer that this is a quick explanation, and signs and symptoms vary from person to person. I also am not doing an explanation for migraines and asthmas as I feel they are well understood conditions.
#eds#zamachstanu • wola zmienia rzeczywistość. zmieściłam dwa dodatkowe kilometry w dotychczasowym czasie na dychę. biegam wolno, muszę pilnować każdego stawu. obudziłam się z myślą, że może dzisiaj jest dzień, w który czuję się dobrze. przez godzinę z hakiem śmiałam się, myślałam o najbliższych i o tym, że mam szczęście. sypnęło się z rękawa najwięcej, ile w życiu przebiegłam, a mój ostatni zarejestrowany bieg był z maja 2019. nie za bardzo rozumiem, jak to możliwe, ale, jak mówi moja Mama - w życiu trzeba mieć fun, i ja go miałam. a wyszło jak wyszło :)
0 92 hours ago
We all have arguments we wish to win, in fact, it is an essential part of any job that requires collaboration. 💁♀️ In our Debating & Persuasive Speaking course you will learn how:
• Come up with arguments quickly
• Be able to spot flaws in your opponents argument
• Construct arguments your audience can easily understand
• Display a familiarity with the formal rules of debating
Made it to our hotel in Lang Son. Staying at the fabulous 5 star resort for the next 3 nights. I can not believe we got this place for $30 a night with breakfast included. There is no one here. Don’t know if that’s because we are getting closer to the Chinese border? Everyone is wearing masks and your asked multiple times if you have any symptoms of sickness. They also took our temperature at the front desk. Vietnam seems to have a pretty good grasp on containment. We are on the 7th floor, and the pool is on the 5th! Gonna have to try it out. Can’t believe the beautiful and friendly people everywhere. I feel so fancy at this hotel. Oh! And they have wheelchairs available! #love 🦓➰🥰 #disabledtravel#eds#wanttodoallthethings
Chronic illness challenge.
Yes. I had to stop working in 2017. I got my service dog in 2016. My wheelchair, rollator, and cane in 2017. My port in 2019. I have so many doctors and specialists now... My whole life has changed. But that's ok. We make our futures.
Follow me (and mine) on everything!
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I was exposed to an allergen this weekend, which put me in bed for about 24hrs. My girls basically spent their day on tablets, so I don’t know when the sharpie came out, but as far as I know, only one of my kids can spell 😉🥰. I have a fun story to tell you about a time when I was 5-6 and I carved my name in my moms dining table (still there, btw). When I saw this, I wanted to laugh and cheer with nostalgia, but I know my girls well, and I cannot react that way right away or I will find a bunch of permanent notes on my table in the morning. I looked away from the table and said, “well, I’ve already asked what happened, and no one admitted to drawing this for me, so how about this... whoever comes forward before I look back at the table will not be in trouble, and we can clean it together and put this behind us.” Of course a confession came quickly, we scrubbed it some... but honestly, we will probably have to deal with it someday when I’m ready to refinish the table (it’s not finished well.) All of that to say... I am actually kind of thankful it didn’t come off, in a “shh, don’t tell them yet” kind of way. I wanted them to experience grace (thanks for my grace mom!) but also to try and fix it, so they understood the lasting impact of it so they consider a choice like this beyond 5 minutes from now... but not because I am scary, but because it cannot always be undone. I have had a challenging season with my health and with my girls, and I’ve not been able to be as even tempered as I prefer, due to overextending myself in complicated situations (yes I am asking for help, it’s been a blessing.) Instead of trying to avoid a certain behavior, I want to pursue another behavior... one where I don’t call myself a hypocrite for yelling at my girls sometimes, and then having reachable moments other times. So have I really changed so much from when I innocently carved my name in mom’s table? Yes. Now I can see many potential outcomes due to my actions, both the flattering and unflattering ones. But what sets me apart even further is that I know now when to apologize, and I know that urgency or firmness are necessary sometimes. I know I can lovingly teach the difference.
1 74 hours ago
Time to meet another one of our beautiful teachers, Miss Emilly! 💜
Miss Emilly has been teaching at Electrix for 6 years now and we are so very lucky to have her as part of our dance family!
Miss Emilly is such a great role model to everyone, especially our young ones, and she has so much knowledge and passion to share with everyone!
Book a free trial in one of Miss Emilly’s classes! 😊
❗❗Calling all UXers❗❗ We are so excited to announce that Charles Bodsworth will be speaking at the Ecom Design Summit 2020.👍 Click the link in our bio to find out more and buy tickets 🎟️ Charles is a digital transformation consultant and programme manager and was most recently director of digital transformation for Imperial War Museums. As well as digital product development, he led the transformation of technical architecture, internal organisation and processes for IWM.
His focus is on helping organisations achieve their mission and unlock their commercial potential through customer-centric digital products.
I keep going by not listening to western white coat doctors who told me to offload to a wheelchair over 10 years ago and prescribed so many noxious poisonous pills that never did help me. I wanted assisted suicide at 50.
At 50, I wouldn’t wear shorts or a bathing suit and I was living in Florida at the time. Now, so close to 60, i’m ready or getting ready to wear that Brazilian bathing suit on a beach. I’m also going to compete in a body competition. 💪🏽💪🏽 Face my fears.💞🙏🏽💞
By facing your fears, you free yourself and live your life anxiety free.
A lot has changed since I made this account and last posted.. One of those things was I got a central line. To be specific, a type of tunneled catheter in my chest. On Friday night said catheter got ripped out by my dog, who jumped off the couch and landed on my fluids line.
Luckily I got to the hospital right away and an amazing team of on call interventional radiologists replaced it for me right away.
This isnt what I imagined my life would be two years ago. I never would have imagined my reaction to having an emergency surgery (however minor) would be "life happens" and shrug it off like nothing the next day.
But here I am. Living despite it all. Keeping going even when it all feels like too much. If I let each surprise of my health destroy me I wouldn't be here.
So here I am, rolling with the punches and dealing with what comes. No matter how hard.
First full day in NYC 🍎 We had so many wonderful recommendations that we might’ve fit a little too much in 24 hours! From Chelsea, to SOHO, to the upper east side - we ate & waked our little potsie hearts out. SO ready for sleep & for our migraine workshop tomorrow with @lyfebulb ✨ A recap of today in our stories!
Stoked to have wrapped up another 5 day block! 😆🚲 I really dug deep today to get a few good laps in around the hill with some skills trails on the side to break it up. After taking an unnecessary crash on day 3 with some "out of my league" riding I wasn't feeling good about pushing the next two days but getting over the initial hurdle each morning has left me feeling accomplished, refreshed and much less focused on the bruises 🙌 Shout out to @thespacebrace wrist brace keeping the hands steady these last couple of days 🔥
Knowledgeable about her own personal experiences, Madison is the one to write to about those difficult topics - anxiety, depression. She certainly knows how to turn any kind of situation into a success story. Madison was diagnosed with POTS and has had various mental health experiences. Being the lucky one of our friendship, Madison lives in Florida and could very easily move into Disney World - which I'm sure she'd love to do. Madison is quite the artist and can turn the simplest of objects, such as a dragon fruit, into the ultimate masterpiece. She has many quirks but her biggest one is her octopus obsession.
If you’re more of the one for small pick me ups, and the occasional letter, then Carley is the one for you. Our friendship bracelet specialist, Carley knows how to tighten any loose knots, whenever they happen to come up. Carley was diagnosed with POTS and autonomic and small fiber neuropathy. Being the sarcastic one of the group, Carley knows how to make us laugh, but always has a sense of guidance behind all of her jokes. While her medical struggles have hindered her competitive dancing career, she has never given up her love for it. Her favorite movie is Tangled, and while she has never said what her favorite character is, she is most similar to the chameleon - Pascal. Like Pascal, Carley knows how to silence a room, but has always been able to retain her fun loving energy.
1 68 hours ago
If you’re one for lengthy letters, then Sarah is the pal for you. Our young and aspiring writer hand writes every individual letter and is quite prompt with all of her responses. Sarah was diagnosed with POTS in December, 2019 and has been on a whirlwind medical adventure since then. She rarely minds the cold, as she comes from Wisconsin, is more attached to her three snails than she is to her fish, and could eat mashed potatoes all day long. She is a part of the intensive tap program at her dance studio, has been riding horses since 6th grade, and runs cross country.
1 58 hours ago
If you're gonna push something to the limit. You have to have some sense of where that limit is.
We live in a society where basic access needs are treated as an inconvenience, an afterthought. In a country where the chronically ill and disabled are subject to laws and systems that are killing us, we are pretty much our only advocates, so do not feel bad for pressing to get your needs met. It’s damn hard to be your main advocate when your body sucks ass, but accessibility is about equality and survival. I missed half a semester last year because I had no support and couldn’t hear my lectures and seminars, but now I can as my basic support plan needs have been met. My point is, NEVER feel guilty for your access needs, which are fundamental human rights and not even that fucking hard to implement- It is absolutely worth doing all you can, or all those around you can, to get your needs met to make your life easier and you should not feel guilty for your needs. After all, able bodied people live in a world made for them, while we do not. 🖤🥄
• I’ve had years of being sidelined and having my voice ignored, but I’m not doing it anymore- especially when I’m the one putting myself into debt to get a degree, so I’ve been raising hell to get my learning support plan implemented (as it legally should be) since September. I didn’t receive my DSA until a few weeks ago because wellbeing told them I didn’t have a brain injury and they also accused my neurosurgeon of not being a real person, making him prove his 20 years of credentials which was humiliating and infuriating. I’ve been failed again and again by systems who are tokenistically supposed to help me, and now that I’m having fewer inpatient admittances, I’m finally able to kick up a fuss and get myself heard. Hell, if you need help, I will help you because I know the British educational system and the PIP system well enough 🖤
1 189 hours ago
let’s talk migraines, y’all. it’s not just a headache, it’s not allergies, it is a nausea-inducing, blurry-vision hellish experience. migraines can cause intense pain, blurred vision, dizziness, nausea, fatigue, trouble concentrating, an “aura” in the vision, and other unpleasant effects. many people suffer from episodic migraines, but others suffer from chronic migraines (occurring 15 days a month or more). according to John Hopkins Medicine, “Migraines typically last a few hours to a couple of days and respond well to specific treatments. However, in some patients, the migraine is particularly severe and long lasting - and may even become chronic, occurring continuously for weeks, months, or even years.” ••••• i am one of the lucky few who has had my migraine for years, 5.5 YEARS of a constant migraine. i’ve gotten used to the pain, but bright lights and loud sounds still make me cringe and feel like someone is digging an ice pick into my brain. ••••• at this point, i’ve accepted that my migraine buddy is here to last. in my next post i’ll explain some of the treatments that i’ve tried to rid myself of the pain. but in the meantime, anyone have any ideas for what i should call my migraine friend?
13 789 hours ago
Hey guys! Welcome to Sincerely You, an organization dedicated to brightening the lives of sick kids, aged 10 to 18. Each of us have gone through our own medical struggles, but the one thing that has always made us get through the day was receiving a letter from each other in the mail. Now, we’d like to do that for you too. Applications to be paired with one of our pals are available on the first of every month, via our google form. We take every application into thoughtful consideration, but it is based on the space and time available for our writers. Once you have been accepted, you will receive an email from us. Then write away! Every letter is catered to the need of the pal, and you are paired based on your medical situation, location, etc. Thanks for being a part of this organization you guys! We hope it makes you feel all kinds of happy :) Sincerely,
Man soll den Tag nicht vor dem Abend loben? Aber auch den Tag nicht vor dem Abend schlecht reden 😉 .
Heute fing der Tag nicht ganz so leicht und unbeschwert an wie der gestrige. Ich hatte wieder vermehrt Schmerzen und konnte nicht so lange am Frühstückstisch sitzen bleiben.
Beim Mittagessen dann- die Teller standen schon parat- der Anruf vom Röntgen. Ich soll mit dem Gehfrei (so nenn ich das jetzt ma) rüber fahren und komme dann auch gleich dran. Die Schwester hakte nochmal nach ob ich mir das zutraue- ja Logo, schaff ich 😊
Also gesagt getan. Doof war nur, dass die Dame vom CT irgendwie an das Gestell dran kam und den Zug auf meine Wirbelsäule damit hochkurbelte. Jedenfalls wars ziemlich schmerzhaft und kam mir vor wie Ewigkeiten bis die liebe Frau die richtige Einstellung fürs Foto hatte bzw ich an der richtigen Stelle positioniert war. Als ich zurück kam musste ich mich sofort mit Kühlbeuteln wieder auf den Rücken legen. Aua!
Mich ärgerte das sehr weil zwei meiner Lieblingsmenschen zu Besuch kommen würden und ich doch gern etwas länger durchhalten wollte.
Naja selbst als die beiden dann da waren konnte ich es nicht länger als 15 min im Rolli aushalten. Nix wars mit gemütlich im Schön Café sitzen und plaudern.
Am Abend wollte Pfleger André mich dann messen- die Körpergröße natürlich.
Und ich glaubte meinen Augen kaum. Ich bin jetzt 1,72m!! Ganze 10 cm größer als vorher 😍
All die Schmerzen und das Leid haben sich gelohnt. Ich bin so unendlich glücklich und stolz, das alles bis hier hin so durchgezogen zu haben.
Also selbst wenn der Tag scheiße anfängt heißt das nicht, dass er nicht trotzdem ein Happy End für dich bereit halten kann ♥️
35 21722 February, 2020
In 2012 during a routine cf admission I was seen by rheumatology because of an accident that happened at the Pilates studio where my hip completely came out of socket &I fell through the reformer. After not even a minute of talking with the doctor he asked me to do a few things & immediately was just like “yeah you have Ehlers danlos” &left the room. I was then told I had to see rheumatology from then on out to handle my symptoms with no addition information or even type testing.
Over the last few years my symptoms have progressively worsened &I became desperate to find a specialist that could see me &help me understand more what was happening to me and how to handle it.
I thankfully found a specialist here in Miami recently &saw her for the first time last week. After 3 hours with her it was determined I’m obviously hyper mobile and obviously really complicated because of the addition of my cf.
We decided genetic testing was needed to finally get to the bottom of what exact mutation I have so we know what to expect in the future &how to prepare for it.
With my severe bladder &uterine prolapse that I’ve had since since right out of high school and in her own words my “insanely translucent skin” she seems to be aiming more on the extremely cautious side of the high change I have the 4th type of Eds. Eds type 4 or Vascular Eds is the most dangerous &life threatening.
A type 4 diagnosis caught early could in fact help to save me some time. We will be able to get me on the proper medication to keep my blood pressure more stable and my physical therapists will know the correct way we should be working on my strength as well as what signs to look for. At the same time that diagnosis would put certain limitations on what I’m able to do &sadly, another medical life expectancy on my conscious.
What has been the most difficult to take in is the fact that Eds is a dominant trait, &if it is type 4 that I have then one of my parents has it. I will then have to be the one to tell them their possible fate as well and that fact is the most heart wrenching of all of this.
I find out our fate in a few weeks and will be sure to update💜
44 30819 February, 2020
My knee is not my own. On the 4th year of my second MPFL surgery, i want to thank my donor. i don’t know who you were or how you died - only that while you were alive & you made the generous decision to donate your tissue & organs after your death. When people think of becoming an organ donor they think of the big things - hearts & lungs & kidneys. i didn’t even know a hamstring could be donated until my surgeries. But they can. Each of my knees is held together by an organ donor’s hamstring. That i can walk today is thanks to you. i can learn & work & swim & dance & live because of the hamstring you probably never even imagined would be used. i don’t ever want to take that for granted. My life is better because you are a part of me. Thank you for holding me up for the last 4 years - here’s to many more miles walked together.
[image description: a close up of Britt’s right knee, on a red blanket. White plastic flowers rest against her knee. Two faded surgical scars are visible.]
19 29122 February, 2020
I need EDS help/advice please!
My left shoulder is really unstable. Like I cant do anything these days without it rolling in the joint or subluxing. Its constant. Upwards of 50 times a day.
The constant snapping back into place is really worrying me because it must be wearing all the cartilage doing that.
I got given the most useless Aid for this.
It's a strap which I velcro over each arm and then strap together over my back.
The only thing is- I cant do it.
There is absolutely no way i can wear this without someone having to strap me into it.
I'm a 27 year old mother, I find it degrading and frustrating that I either injure myself more to be independent, or I need constant care if I wish to use my aid (it needs adjusting every so often as it is NOT comfortable). Are there any other aids that can help keep my shoulders where they are meant to be while still retaining my dignity and independence?
Note; Please dont twist my words to make it seem like I think aids are undignified- I already get a lot of help from jack behind the scenes. I'd rather keep what independence i have is all and I'm allowed to feel that way with zero guilt.
“why are you wearing all those braces?” “but you look just fine!” “it’s just hypermobility...what’s the big deal?"recently, i’ve gotten MANY questions like these, and it’s probably time i tell my new friends what’s going on. .
i have ehlers-danlos syndrome (type III/hEDS). it’s a rare genetic chronic illness that causes issues with collagen production, and therefore ALL connective tissue. it causes headaches, dizziness, all over joint pain/dislocations, muscle spasms, nausea, easily opened/bruised wounds….and more! my body doesn’t have connective tissue to hold itself together like yours (most likely) does. .
eds is an invisible illness. i’m used to always being in pain. behind my “looking normal” is 1 hour daily physical therapy, lots of dietary restrictions and supplements, no practicing for more than 2 hours, no backpacks, seeing lots of medical specialists, and endless rolls of KT tape, just to name a few.
most days, i’m in pain. but you won’t know. some days are just extra painful. those days you’ll see me wearing my big bulky braces, and can’t even pick up my flute.
i try not to focus on my disability because my illness doesn’t define me. smiling and laughing through it helps me get through so much!
playing flute has become a privilege. i’m so thankful that music keeps my soul alive when my body fails me and so thankful to the supportive people i have in my life (you know who you are!) ❤️
if you have any questions, don’t hesitate to reach out! you won’t offend me haha ☺️ also tagging some accounts with great info below. .
. @ehlers.danlos@ehlersdanlosuk #eds#edsawareness#flute#flutist#music#musician#classical#piano#violin#chronicillness#chronicpain#boston#marfans#POTS#heds
67 26911 February, 2020
i have a jeanetic disorder. get it? it’s like genetic but with jeans. because i’m wearing an all jean outfit, and i have a genetic disorder. you get it, right? i can explain again,
[Image description: Rian is sitting outside in their wheelchair. They are wearing jean pants, a jean shirt, a jean jacket with quilt patterned shoulders, and cowboy boots. An amazing head-to-toe, all jean outfit. Truly the ultimate cowboy. They are surrounded by a ton of wildflowers, outside next to a bright purple table.]
38 1,10011 February, 2020
POST ABOUT TODAY💗
Sooo today didn’t go to plan
The doctors messed up the test and told me not to gluten load. I was getting tested for celiac disease and to get tested for that you need to gluten load. So they told me I didn’t need to gluten load, just had to get the test done (makes no sense because now what are they looking for?). I got there and everything was fine until the doctor asked if I was gluten loading. I said no and that the lady on the phone told me that I didn’t have to, so I didn’t. He asked a different doctor if they can still do the test even though I didn’t gluten load. Basically he gave me the option of getting the test today (like it was supposed to be) and they would just have a look at my stomach. Or I could gluten load and come back in 6-8weeks and then do the test. Doing the test without gluten loading was pointless and going under general anaesthetic 2x wasn’t ideal. So we decided to not do the test and to gluten load and come back in 6-8weeks to do the test properly
The next few months are going to be hard because I have to be gluten loading (having around 1 slice of bread a day) doesn’t sound bad but it’ll be horrible because I don’t do well at all with gluten, hence why I’m getting the test done
We saw also saw an untrained “assistance dog”. I’m not one to judge whether a team is real or not. But this dog was clearly not an assistance dog
Anyways, that’s my day. It definitely wasn’t the best day at all but oh well, it happens I guess. I’m pretty bummed about everything. This isn’t the first time this has happened which makes it even more annoying because I deal with it a lot
Butttt I am very excited to hang out with @thehoppingark on Friday, it’ll definitely make this week better. Looking forward to it :D
Please do not use our photos without permission📷