Hi my dear furrends🤗...i was allowed a short walk on my favourite beach today as mum thinks my incontinence is to do with the lack of exercise and weak muscles in my pelvic floor...so only short walks for me at the moment..all the tests came back negative thank God except the pancreatitis is still happening though at a milder level thankfully and of course still have to take steroids for my collapsing trachea which help ...the good thing is I'm still on 4 home cooked meals a day👅👍😁 hope to put on some weight soon..!😑 Will keep you posted!!😉 #stillrecovering#pancreatitissucks#imagoodgirlreally#wirefoodle#instabringspeopletogether
I’m over this, I was feeling better energy wise, but just a simple dinner out my pancreas into a tizzy, even with my enzymes. My pharmacist asked why I take the enzymes, her brother had his pancreas removed and an islet transfer to his liver. It could be so much worse, I take comfort in that. But, it’s possible my diabetes, along with all my other autoimmune disease, has progressed to a new normal. I am doing all I can to change this, it takes time. I do have to say, this flare is the worst I’ve had, and I’m whole food plant based. That scares me. #pancreatitissucks#heatingpad#feelingicky#chronicidiopathicpancreatitis
My lovely view of East Missoula and the the mountain ranges from my hospital bed. Day 4 already, hoping I get to go home tomorrow. Not expected, this one. But recovering without complications, thanks to the Lord! #pancreatitissucks
When patients come are diagnosed with acute pancreatitis, the first step in management is assessing the severity. Patients with severe acute pancreatitis should be admitted to an intensive care unit setting.
If patients have acute pancreatitis, management includes:
1. aggressive fluid resuscitation: this usually amounts to 7-10 liters is fluid in the first 24 hours! This is a major part of treatment that often is underused. Patients can become volume depleted very quickly. Caution must be used in patients with chronic kidney or heart disease.
2. Pain control: I’m not a fan of giving opioids to just anyone, but the pain in acute pancreatitis often requires it and should be used to provide pain relief.
3. NPO status: during episodes of acute pancreatitis, typically patients should not eat within the first 24-48 hours, mainly because pain will increase. In mild cases, pain improves quickly and feeding can be resumed within 24 hours. In more severe cases, food is not tolerated for several days. After ~ 5 days, tube feeding can be used to provide nutrition.
Throughout the treatment, blood tests should be checked to monitor electrolyte levels, glucose levels and kidney function. Urine output should also be checked to make sure they are being adequately hydrated. #acutepancreatitis#pancreatitis#pancreatitisdiet#pancreatitissucks#pancreatitisawareness#abdominalpain#alcoholism#gallstones#rgv#rgvlife#riograndevalley#mcallentx#edinburgtx#renaissancegastroenterology#habloespanol#doctorsofinstagram#soydoctor#hispanicdoctors#gastroenterology#gidoctor
Hospital knitting .. been here with my mums youngest sister but older than me .. keeping up her morale after a really bad case of pancreatitis.. today I’m sat in her room inhaling the scent of a tiny bunch of wild freesias and contemplating how precious life is and wonderful our doctors and hospitals are ... bye bye gall bladder and those pesky little gallstones ... feeling gratitude #pancreatitissucks#sockknitting#zauberball#sittinginsilence#waiting#thankgod#theluckycountry
4 456 September, 2019
Dinner is WW lasagne, salad & 50% reduced fat salad cream for 9SP 😊
Part of fighting a cranky panky battle is managing stress. I think sometimes we don’t feel or understand how stress effects our body. This morning she was in the peak of a very bad pain flare. My heart rate shot up for over ten minutes watching her hurt like hell. I can’t imagine the toll it truly takes on her body. The last few months I’ve put myself second. This was a clear reminder if I don’t take care of myself I won’t be taking care of others. So blessed with the others that have helped her so much these last few months. #crankypankymom#crankypankylife#pancreatitissucks
0 25 September, 2019
My littleman oliver is 11 weeks old now i couldn't love him more if i tried xxx
😂😂 so a little about me lately and why I'm back on WW strictly!!
Friday I was admitted to Hospital with gallstones and pancreatitis. Apparently pancreatitis at my age is rare, as usually it can be caused due to alcoholism. Mine was brought on through my gallstones. Now that I'm home I have to adopt a low fat, high fibre and high protein diet. Low fat for my gallbladder and the protein and fibre to help heal my pancreas. It's going to be difficult until I get the hang of it but I would much prefer that than have another flare up and go through that pain again because it is almost unbearable!
Also obviously no alcohol are allowed to touch my lips for at least 6 months not that I drink much anyway.
Now I'm just waiting for an appointment to have my gallbladder removed which will basically put me back to normal.
Now I just find myself checking the fat content on everything as well as the smartpoints. Found this photo very fitting to explain my new situation 😂 my Niece took it when she came to visit me because she found it hilarious when I grabbed my bedpan and headed towards the toilet 😂😂
The nurses also turned my IV machine off because it kept beeping and pissing me off 😂 #ww#wwuk#wwdiet#wwdiet#wwdietplan#gallbladder#gallstones#gallstonesdiet#gallstonessuck#gallstoneawareness#pancreatitissucks#pancreatitis#pancreatitisawareness#wwcommunityuk#wwcommunity#weightwatchers#weightwatchersuk
Dinner looks a mess but it was lovely. WW chicken Lasagne (7) with lots of veg underneath.
Had breakfast and lunch in Hospital so I've had to guess points. So I've over pointed just incase. So ending today on 21 points with 3 remaining 👌
💜I’ve done it for 8 years today...living without a pancreas!!💜 YES it is possible! No, my journey hasn’t been the easiest but who cares🤷♀️🤷♀️?? I’ve lived to see 2 of my children graduate, I’ve lived to meet and love on 2 grandgirls, I’ve lived 8 more years that I probably would have missed with end stage chronic pancreatitis, I was expected to die within another 4~6 months back in 2011😞. But instead Dr Syed Ahmad and the Reid surgical team at the University of Cincinnati Pancreatic Disease Center saved my life!! It’s crazy that the Rn and islet teamthat processed my pancreas for transplant said that my pancreas looked completely healthy on the outside when they first removed it...however when they opened it up, it was highly diseased from head to tail. I got a huge islet yield(829,000 islet), but it goes to show that it’s not about quantity, it’s about quality. I was off insulin for about 2 years port op...but then experienced a “fast and large” islet death so now I’m insulin dependent(thankfully using one of the best insulin pumps on the market “Omnipod Dash”) it’s been tough, but even if I knew then what I know now...I’d do it all over again as it saved my life for sure!! I’m always here to share my story or answer any questions for anyone who might need support!! I pray and put guys thoughts out into the universe for those who are just starting this journey, the ones in the middle trying to Lear’s to navigate this disease, and the patients like me, who are learning the new normal wether the surgery was a complete success or frustrating along the way please reach out if you need to my “purple people”even as the care-givers! Blessings sent to all my cranky panky peeps...the fight continues until the cure is found💜💜💜💜💜. #pancreatitiswarrior#pancreatitissucks#powertothepurplepeople#tpiatsurvivor #
Today, Aiden’s ear looked a little bit less yellow and he ate so much! I did try to match the lighting conditions from my last post showing his ears. Thank goodness, because we are officially on fasting time until after his ultrasound. He spent the whole day hanging out with us, giving kitty kisses and demanding brushing. Tomorrow, Oisin is going to be a royal PITA since she won’t be able to graze as usual. It’s just a few hours. And the irony is not lost on me that we’ve been doing everything to get Aiden to eat and now he has to fast. Wish us good luck❤️ #irishtwincats#catsofinstagram#pancreatitissucks
4 926 August, 2019
The only time you fall asleep on the job and not get hustled for.
As a kid I was sick all the time. In and out of hospitals, they struggled to figure out what was wrong with me. After years of every test imaginable they came to the realization that I had an extremely rare hereditary condition of a common adult ailment. I was diagnosed shortly after my dad, at my mom’s request to be tested, even though it was unheard of to show up in children.
Throughout my childhood I tried to manage my pain with self soothing, so I sucked my thumb way after it was ok to do so, I took enzymes at school, so everyone thought there was things wrong with me. I struggled it fit in and thrive, especially when I missed school for extended periods of time.
After having a surgery to help fix it at age 8 things were ok for a while, but then it got worse again and I had a surgery again after having my daughter. By this point I realized taking care of my health wasn’t just about me anymore. As I looked into her face I knew I had to do whatever I could to make sure I was there for her.
Then at age three she had her first attack. I knew she had the gene for it but was hoping she wouldn’t get the symptoms, as 20% did, but she wasn’t that lucky. I tried to switch up my eating, add in exercises, but didn’t really know what I was doing. All the doctors said I was doing great, but I didn’t feel great. Routine tests to make sure I didn’t develop diabetes or cancer were just a part of normal life.
Then when my son was born, also with the gene, and then had his first attack I made it my mission to keep myself accountable to my health. I decided step best way to learn and keep at it was to coach others as I learned.
Now four years later it is my driving force. No matter how hard things get, or what comes up in my life, I work to help myself and others so that I can be there for my kids. As long as possible. 💕
Accepting all prayers and positive energy and nice thoughts and whatever ya got for this guy. He’s lost about six lbs and is suffering, really suffering, from acute pancreatitis. I’ve never seen a cat in real life so sick and felt so helpless. And I can’t imagine having my #irishtwincats separated even for a day, much less in life. I know how painful it is to humans, and it breaks my heart... it really has been rough on us. #pancreatitissucks#pancreatitis#catsofinstagram
My updates of my ups & downs aren't here for pity, but to show how amazing Jehovah God's work is. Obstacle over obstacle but through Jesus Christ, he helps me bounce back and remain sane; motivating me to strive for better health while achieving life goals.
A year ago today I was this fragile guy, living off a feeding tube with the title "failure to thrive as an adult" weighting 115lbs. Although I still struggle a lot, it's nothing like before. Able to eat and do activities I didn't see myself doing this time last year. Maintaining a health weight btwn 140-150lbs.
For those struggling (no matter what it may be) just know all things are possible and don't lose faith!! #positivemindset is key 🙏🏾🙏🏾 #gastriccancer#CDH1#nostomachnoproblem#pancreatitissucks#beatcancer#success#faith#motivation
44 23710 January, 2019
Оч хочу домой, делать миллиард несэлфи, печь хачапури, делать кексы, тосты, мясо, заказать 89 чизбургеров, съесть их грязными руками прямо в пальто, не раздеваясь, в коридоре, хочу съесть 899 блинов с икрой, хочу жареную картошку с салатом, хочу куриную котлету с майонезом, точнее майонез с котлетой, хочу ведро оливье, хочу макароны с сыром, обычным, российским сыром и кетчупом Хайнс, хочу сосиски с горошком, хочу литр ледяной Кока-Колы с лимоном, хочу пельмени с уксусом, хочу бокал ледяного рислинга и бутылку правильно теплого, подышавшего зинфанделя, хочу яблочный пирог, булку с корицей намазать маслом и положить сверху сыр, хочу съесть 4 круглых сыра бри, хочу 10 жирных воздушных круассанов, оставляющих миллиард крошек на одежде, хочу сделать идеально круглый шоколадный торт, поставить торт на стеклянную подставку для торта на изящной ножке, взять кулинарную лопатку, аккуратно обмазать шоколадный торт шоколадным кремом, со всех сторон, включая бортики, потом взять острый нож, разрезать торт на 8 кусков и все эти куски сожрать одной, переключая каналы телевизора, с утра до ночи. Больше ничего не хочу. Спасибо за внимание. #pancreatitissucks
This is a hard post because we’re still not sure of our course of action with Hurley or if he’s going to get better 🐶 ⠀⠀⠀⠀⠀⠀⠀⠀⠀
We left for Mexico on March 2nd and within two days, my pet sitter had to take him to the ER to stay for two days while he received IV fluids and antibiotics. Come to find out, he has a horrible case of #pancreatitis and wasn’t eating and vomited about 20x. His ultrasound showed his pancreas was 4x it’s normal size. We still have no idea what caused it. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
He was released after two days and he’s home and almost back to his normal self except for he’s extremely tired and only eating a tiny tiny bit. Barely anything. Went from 8-10 meds to 4 but he hates taking them so I’ve been shoving them down his throat (as nice as I possibly can). ⠀⠀⠀⠀⠀⠀⠀⠀⠀
We are up to $6,000 within a week of vet bills. So what I’m taking away from this disaster is to always have a fund set aside for things like this especially if you own pets. It’s what you sign up for when you commit your lives to them. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
Praying that he gets better soon because he might not and the thought of that terrifies me but I’m optimistic. Prayers needed! He has his re-check visit and ultrasound on Wednesday so really hoping he’s doing better and healing as best as he can. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
If you have any stories for me or reassurance, I’d love that and am needing that right now. #pancreatitissucks